It is currently 29 Mar 2024, 03:34
Andyp wrote:I hope that you are both back home by now and all went well.
Setting here watching and reading the BBC news with no first hand experience of the NHS for the past 10 years I really wonder if it is really is as bad as the media are reporting.
Mike G wrote:We have a friend with MS. She was hospitalised in November with an infection (a lot of people with MS are immuno-compromised as a result of previous treatments). She was ready for discharge after 4 days. However, as she needs 24 hour care (someone has to turn her in bed through the night, for example) the hospital had to await confirmation that her care package was in place before letting her out. The council, who have funded her care for the last 12 years, were in the middle of a review of all such care packages, couldn't confirm that care was in place for her for nearly 3 weeks, when she was discharged into the exact same care contract and the exact same carers who had looked after her for the last X years.
So, this time it was the council's fault. But there was a bed which should have been available for nearly 3 weeks, leaving the poor girl staring at a wall, unable to turn, with no hoist to get her to the lavatory, no-one to turn her at night, no chance of moving from sitting to hanging to lying as she does normally during the day to relieve pressure. A bloody nightmare all round. I am sure that in some circumstances relatives would actually "kidnap" the patient from hospital rather than see them tortured like this.
TrimTheKing wrote:Bloody hell Bob that sounds serious!! I know you've mentioned before some of the physical issues Mrs B suffers from but I can only recall leg/ankle related ones. What one earth (feel free to not answer if it's too personal a question!) is/was the whole head falling off situation all about???
Cheers
Mark
Sent from my iPhone using Tapatalk Pro
9fingers wrote:TrimTheKing wrote:Bloody hell Bob that sounds serious!! I know you've mentioned before some of the physical issues Mrs B suffers from but I can only recall leg/ankle related ones. What one earth (feel free to not answer if it's too personal a question!) is/was the whole head falling off situation all about???
Cheers
Mark
Sent from my iPhone using Tapatalk Pro
Mrs has lupus which is a malfunction of the auto immune system which instead of fighting bad things starts attacking the good bits. It can have a go at all sorts of parts of the body.
In Mrs case years ago it attacked lungs but that is now in remission. For 25 years or so it has been destroying cartilage which has led to replacement or repair of joints.
This latest episode has destroyed the discs in the upper spine as well las the tendons that go between the top of spine and the collar bones or in that area hence the potential for head falling off.
We have yet to see the X-rays of what has been done but we expect a mix of metal and bone grafts fusing the top 5 vertebrae.
She will be able to nod up and down but not move her head from side to side so I'm looking forward to her agreeing with me fully in future
Other repairs so far to toes ankles knees knuckles thumbs wrists and shoulders.
Bob
Rod wrote:Hi Bob hope your wife is feeling better?
I've been In UHS since the 5th - 23hr operation carried over 2 days but under anaesthesia for all the 2days.
"LSD" tripping for over a week !!
Have to lay on sides ( no sitting) so makes life pretty boring. NBM so dreaming of ice cold G&T's
Rod
Rod wrote:Hi Bob hope your wife is feeling better?
I've been In UHS since the 5th - 23hr operation carried over 2 days but under anaesthesia for all the 2days.
"LSD" tripping for over a week !!
Have to lay on sides ( no sitting) so makes life pretty boring. NBM so dreaming of ice cold G&T's
Rod
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