Only just found out it is International Epilepsy Day.
Our daughter is going through a torrid time of it recently. As well as the impact it is having on her it takes its toll on dearest and dearest too.
She has had three seizures today since 4.45 am, it will take another day for here to get over it. Not the sort of epilepsy that responds to any of the available drugs nor the recently approved but not easy to get cannabinoid medicines.
We await further MRI, DNA and EEG results and consultations with the experts in Paris next month.
Can only hope things will get better soon.
Hope this doesnt sound too much like a rant.